Let’s Make the World a Better Place
Fragile Skin – Strong Spirit
High quality is our mission, helping to heal is our passion. Supporting children with the EB disease has always been our priority at the personal level, and now with your support, we’d love to take it to another level.
Heal Child Skin Disease Foundation is a non-profit organization, seeking to directly help those affected by severe skin diseases and more specifically Epidermolysis Bullosa (EB). At Heal, our goal is to raise funding to sponsor children affected by such diseases. 100% of the donations we receive are allocated towards the treatment of our patients.
Currently, Heal sponsors over 400 children who suffer from EB. These children are coming from low-income families who cannot support their child sufficiently. With the help of our donors, Heal has managed to provide clinical services, surgeries, medical supplies, etc. for our patients. However, there is a constant need to provide our patients with the expenses required for their treatment.
Understanding EB (Epidermolysis Bullosa)
Epidermolysis Bullosa (EB) is a rare genetic connective tissue disorder. There are many different variations of EB, but all share the common symptom of blistering skin that could tear and disintegrate due to any sort of minor movement or trauma. Blistering is not always confined to the outer skin of the body, esophagus, mouth, and inner lining of the stomach is affected as well. Any victim of EB experiences constant pain can be extremely enervating and in some cases deadly before the age of 30. EB affects 1 out of every 20,000 live births.
Unfortunately, there is NO CURE for EB. However, improvement of symptoms can be made. This can include prevention of pain and infection, bandaging, surgeries, and care for wounds/blisters. Those requiring their entire bodies to be wrapped are in need of special bandages, which are in high demand but low supply. Additionally, consistent surgeries are needed to help those who have complications from the disease. If you wish to learn more about this disease and about the Heal Child Skin Disease Foundation or donate, you can follow them on Facebook or simply visiting their website.